CHARGE Syndrome: Clinical Trials

1 trial for CHARGE Syndrome, newest first

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1 enrolling by invitation. 1 Not applicable.

By phase and status

PhaseTrialsStatus
Not applicable1Enrolling by invitation 1

Follow CHARGE Syndrome: new trials by email Literature Review of CHARGE Syndrome trials Research Report on CHARGE Syndrome

Trials (filtered) newest first · largest first

All 1 trial

Tick up to 5 trials to compare them side by side (eligibility, arms, endpoints, adverse events) in a Literature Matrix.

TrialPhaseStatusSponsorEnrollmentStartUpdated
Palliative Care Needs of Children With Rare Diseases and Their Families
Family Centered pediatric palliative care for family caregivers of children with rare diseases. - Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia
Not applicableEnrolling by invitationChildren's National Research Institute4802025-10-022026-01-28

Narrower conditions

Anxiety Disorders (1)  ·  Cockayne Syndrome (1)  ·  Depression (1)  ·  Factor VII Deficiency (1)  ·  Hemophilia A (1)  ·  Hernias, Diaphragmatic, Congenital (1)  ·  Infantile Epileptic-Dyskinetic Encephalopathy (1)  ·  KBG syndrome (1)  ·  Noonan Syndrome (1)  ·  Rare Diseases (1)  ·  Short Bowel Syndrome (1)  ·  Trisomy 13 Syndrome (1)

Broader conditions

Abnormalities, Multiple (1)  ·  Behavior (1)  ·  Behavioral Symptoms (1)  ·  Blindness (1)  ·  Blood Coagulation Disorders (1)  ·  Blood Coagulation Disorders, Inherited (1)  ·  Bone Diseases (1)  ·  Bone Diseases, Developmental (1)  ·  Cardiovascular Abnormalities (1)  ·  Cardiovascular Diseases (1)  ·  Chromosome Disorders (1)  ·  Coagulation Protein Disorders (1)  ·  Coloboma (1)  ·  Congenital Abnormalities (1)  ·  Congenital, Hereditary, and Neonatal Diseases and Abnormalities (1)

Sponsors

Children's National Research Institute (1)

Countries

United States (1)

Top investigators

Maureen E Lyon, PhD (1)

NIH funding

R01HD117137 (1)