3 completed, 1 enrolling by invitation, 1 recruiting, 1 withdrawn. 2 Not applicable.
| Phase | Trials | Status |
|---|---|---|
| Not applicable | 2 | Completed 1, Enrolling by invitation 1 |
Follow Ehlers Danlos Syndrome: new trials by email Literature Review of Ehlers Danlos Syndrome trials Research Report on Ehlers Danlos Syndrome
Tick up to 5 trials to compare them side by side (eligibility, arms, endpoints, adverse events) in a Literature Matrix.
| Trial | Phase | Status | Sponsor | Enrollment | Start | Updated |
|---|---|---|---|---|---|---|
| Group Coaching Study for Life Goals Group Coaching - Students, Spinal Cord Injury | Not applicable | Enrolling by invitation | Thomas Jefferson University | 100 | 2024-07-01 | 2025-07-24 |
| Hypermobile Ehlers Danlos Syndrome Healthcare Usage and Outcomes in England Ehlers Danlos Syndrome | Withdrawn | Walton Centre NHS Foundation Trust | 2024-03-14 | 2026-10-16 | ||
| Unhide® Project: A Digital Health Platform to Collect Lifestyle Data for Brain Inflammation Research Post-Acute COVID-19 Syndrome, ME/CFS | Recruiting | Brain Inflammation Collaborative | 10000 | 2023-07-05 | 2026-01-22 | |
| Assessment of Small Fiber Neuropathy in Rare Diseases Using Sudoscan Sudoscan, Skin biopsy, QSART - Small Fiber Neuropathy, Fabry Disease | Not applicable | Completed | Massachusetts General Hospital | 102 | 2016-08-01 | 2021-10-07 |
| Head Circumference Growth in Children With Ehlers-Danlos Syndrome Who Develop Dysautonomia Later in Life Ehlers Danlos Syndrome, External Hydrocephalus | Completed | Genetic Disease Investigators | 21 | 2011-05-01 | 2024-02-14 | |
| Study of Heritable Connective Tissue Disorders Connective Tissue Disease, Dissecting Aneurysm | Completed | National Human Genome Research Institute (NHGRI) | 900 | 1997-03-01 | 2008-03-04 |
Ehlers-Danlos Syndrome (6) · Autonomic Nervous System Diseases (2) · Postural Orthostatic Tachycardia Syndrome (2) · Anorexia Nervosa (1) · Anxiety Disorders (1) · Aortic Dissection (1) · Arachnodactyly (1) · Arthritis, Juvenile (1) · Arthritis, Psoriatic (1) · Autoimmune Diseases (1) · Autoimmune Diseases of the Nervous System (1) · Avoidant Restrictive Food Intake Disorder (1) · Brain Injuries, Traumatic (1) · Bulimia Nervosa (1) · Celiac Disease (1)
Cardiovascular Diseases (6) · Collagen Diseases (6) · Congenital Abnormalities (6) · Congenital, Hereditary, and Neonatal Diseases and Abnormalities (6) · Genetic Diseases, Inborn (6) · Hematologic Diseases (6) · Hemic and Lymphatic Diseases (6) · Hemorrhagic Disorders (6) · Hemostatic Disorders (6) · Skin Abnormalities (6) · Skin Diseases (6) · Skin Diseases, Genetic (6) · Skin and Connective Tissue Diseases (6) · Vascular Diseases (6) · Connective Tissue Diseases (5)
Brain Inflammation Collaborative (1) · Genetic Disease Investigators (1) · Massachusetts General Hospital (1) · National Human Genome Research Institute (NHGRI) (1) · Thomas Jefferson University (1) · Walton Centre NHS Foundation Trust (1)
United States (5)
Amel Karaa, MD (1) · Andrew Brodbelt (1) · Diana L Driscoll, O.D. (1) · Megan L Fitzgerald, PhD (1)