3 completed, 2 terminated, 2 unknown, 1 recruiting. 8 Not applicable.
| Phase | Trials | Status |
|---|---|---|
| Not applicable | 8 | Completed 3, Terminated 2, Unknown 2, Recruiting 1 |
Follow Porphyrias: new trials by email Literature Review of Porphyrias trials Research Report on Porphyrias
Tick up to 5 trials to compare them side by side (eligibility, arms, endpoints, adverse events) in a Literature Matrix.
| Trial | Phase | Status | Sponsor | Enrollment | Start | Updated |
|---|---|---|---|---|---|---|
| Clinical Research on Acute Intermittent Porphyria and the Use of Carbohydrate-Rich Diet as a Treatment Carbohydrates - Porphyria, Acute Intermittent | Not applicable | Recruiting | Nordlandssykehuset HF | 50 | 2024-01-27 | 2026-03-27 |
| Protection Against Visible Light by Dihydroxyacetone in Erythropoietic Protoporphyria Dihydroxyacetone, Placebo - Erythropoietic Protoporphyria | Not applicable | Unknown | Bispebjerg Hospital | 6 | 2023-02-23 | 2023-03-23 |
| Oral Iron for Erythropoietic Protoporphyrias Oral Iron - Erythropoietic Protoporphyria, EPP | Not applicable | Completed | Icahn School of Medicine at Mount Sinai | 16 | 2016-12-01 | 2020-09-11 |
| Effect of Isoniazid on Protoporphyrin Levels in Erythropoietic Protoporphyria Isoniazid - Erythropoietic Protoporphyria (EPP), X Linked Erythropoietic Protoporphyria | Not applicable | Terminated | University of Utah | 11 | 2012-03-01 | 2017-01-16 |
| The Effect of Low Intensity Exercise on Quality of Life and Hemodynamics in Patients With Permanent Atrial Fibrillation Exercise - Atrial Fibrillation | Not applicable | Terminated | University of Texas Southwestern Medical Center | 20 | 2007-07-01 | 2019-01-16 |
| Does Exercise and Heat Increase the Lightsensibility in Patients With Erythropoietic Protoporphyria exercise, heat, red light illumination - Erythropoietic Protoporphyria | Not applicable | Unknown | Bispebjerg Hospital | 2003-01-01 | 2006-10-11 | |
| Study of Cysteine Hydrochloride for Erythropoietic Protoporphyria cysteine hydrochloride - Erythropoietic Protoporphyria | Not applicable | Completed | FDA Office of Orphan Products Development | 20 | 1996-10-01 | 2015-03-25 |
| Studies in Porphyria IV: Gonadotropin-Releasing Hormone (GnRH) Analogues for Prevention of Cyclic Attacks luteinizing hormone-releasing factor - Porphyria | Not applicable | Completed | National Center for Research Resources (NCRR) | 1987-03-01 | 2005-06-24 |
Protoporphyria, Erythropoietic (5) · Metabolism, Inborn Errors (2) · Rare Diseases (2) · Atrial Fibrillation (1) · Coproporphyria, Hereditary (1) · Motor Activity (1) · Porphyria, Acute Intermittent (1) · Protoporphyria, Erythropoietic, X-Linked Dominant (1)
Congenital, Hereditary, and Neonatal Diseases and Abnormalities (8) · Genetic Diseases, Inborn (8) · Metabolic Diseases (8) · Nutritional and Metabolic Diseases (8) · Digestive System Diseases (7) · Liver Diseases (7) · Porphyrias, Hepatic (7) · Skin Diseases (7) · Skin Diseases, Genetic (7) · Skin and Connective Tissue Diseases (7) · Pathologic Processes (3) · Pathological Conditions, Signs and Symptoms (3) · Disease Attributes (2) · Arrhythmias, Cardiac (1)
Exercise (2) · Carbohydrates (1) · Cysteine (1) · Dihydroxyacetone (1) · Gonadotropin-Releasing Hormone (1) · Hot Temperature (1) · Iron (1) · Isoniazid (1)
Bispebjerg Hospital (2) · FDA Office of Orphan Products Development (1) · Icahn School of Medicine at Mount Sinai (1) · National Center for Research Resources (NCRR) (1) · Nordlandssykehuset HF (1) · University of Texas Southwestern Medical Center (1) · University of Utah (1)
United States (4) · Denmark (2) · Norway (1) · Sweden (1)
Eliane Sardh, MD PhD (1) · Elin Storjord, MD PhD (1) · Hans C Wulf, MD, Sci (1) · John D Phillips, PhD (1) · Jose A Joglar (1) · Karl E Anderson (1) · Manisha Balwani, MD, MS (1) · Micheline M Mathews-Roth (1) · Per Dahlqvist, MD PhD (1)
U54DK083909 (2)