14 recruiting, 11 unknown, 9 completed, 5 terminated. 4 Not applicable, 1 Phase 2.
| Phase | Trials | Status |
|---|---|---|
| Not applicable | 4 | Unknown 2, Active not recruiting 1, Completed 1 |
| Phase 2 | 1 | Completed 1 |
Follow Registry: new trials by email Literature Review of Registry trials Research Report on Registry
Tick up to 5 trials to compare them side by side (eligibility, arms, endpoints, adverse events) in a Literature Matrix.
| Trial | Phase | Status | Sponsor | Enrollment | Start | Updated |
|---|---|---|---|---|---|---|
| Southeastern ATTR Amyloidosis Consortium: SEATTRAC Family Registry Registry - Amyloidosis, Hereditary | Not yet recruiting | Virginia Commonwealth University | 1000 | 2026-09-01 | 2026-08-12 | |
| BE.Amycon Registry UZ Leuven Registry - Amyloidosis | Withdrawn | Universitaire Ziekenhuizen KU Leuven | 2025-09-01 | 2026-09-25 | ||
| German Registry of Alzheimer's Disease Treated With Transcranial Pulse Stimulation Registry - Alzheimer Disease | Recruiting | Heinrich-Heine University, Duesseldorf | 100 | 2025-08-06 | 2026-10-13 | |
| ARREST-NEPHROSIS - Austrian Resistant Nephrotic Syndrome Treatment Response Registry and Biobank Registry - Focal Segmental Glomerulosclerosis, Proteinuria | Recruiting | Christoph Aufricht | 100 | 2023-01-01 | 2023-12-08 | |
| The Precision CAD Trial Medical/Behavioral therapy, Standard of Care, Registry - Coronary Artery Disease | Not applicable | Active not recruiting | Emory University | 276 | 2022-10-19 | 2025-11-21 |
| Registry for CADASIL Registry - Cerebral Autosomal Dominant Ateriopathy With Subcortical Infarcts and Leukoencephalopathy | Recruiting | University of Wisconsin, Madison | 2500 | 2022-06-03 | 2026-10-23 | |
| AIMS Academy Clinical Research Network - Non Metastatic Rectal Cancer Operated on With Curative Intent Registry - Non Metastatic Rectal Cancer | Withdrawn | Niguarda Hospital | 2021-10-01 | 2023-03-23 | ||
| Registry for Patients With Achondroplasia / Hypochondroplasia (OMPR-Ach/Hy) Registry - Achondroplasia, Hypochondroplasia | Recruiting | Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico | 200 | 2021-09-01 | 2022-04-28 | |
| Natural History Study of Patients With Methylmalonic Acidemia and Propionic Acidemia Registry - Methylmalonic Acidemia, Propionic Acidemia | Terminated | HemoShear Therapeutics | 11 | 2021-08-27 | 2023-12-27 | |
| Genotype-phenotype Association in Hereditary Hemorrhagic Telangiectasia Registry - Hereditary Hemorrhagic Telangiectasia, HHT | Completed | Fundacion para la Investigacion Biomedica del Hospital Universitario Ramon y Cajal | 85 | 2021-04-30 | 2025-03-17 | |
| Childhood Cancer Predisposition Study (CCPS) Registry - Pediatric Cancer | Recruiting | Emory University | 1050 | 2021-04-22 | 2025-10-29 | |
| Lyon Registry of Stroke Treated by Thrombolysis or Thrombectomy Registry - Ischemic Stroke | Recruiting | Hospices Civils de Lyon | 4500 | 2020-08-01 | 2020-11-09 | |
| Proton Radiation Therapy Registry Registry - Cancer, Therapy-Related | Recruiting | Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins | 5000 | 2020-04-07 | 2026-06-30 | |
| Cardiac Amyloidosis Registry Study Registry - Amyloidosis, Immunoglobulin Light-chain | Unknown | Cedars-Sinai Medical Center | 5000 | 2020-01-08 | 2023-09-06 | |
| Pharmacokinetic (PK) and Pharmacodynamics (PD) Study of Ilera Specific Products Registry, PK microsampling of blood - ALS, Autism Spectrum Disorder | Terminated | Children's Hospital of Philadelphia | 10 | 2019-05-15 | 2020-07-30 | |
| Barts Endocarditis Research Registry registry - Infective Endocarditis, Endocarditis | Recruiting | Queen Mary University of London | 1000 | 2019-04-24 | 2026-07-17 | |
| An Electronic Registry to Improve Adherence to Active Surveillance Monitoring at a Safety-net Hospital Registry - Prostatic Neoplasms | Terminated | University of California, San Francisco | 48 | 2018-07-01 | 2022-08-04 | |
| Customized Registry Tool for Tracking Adherence to Clinical Guidelines for Head and Neck Cancers Registry - Head and Neck Neoplasms | Completed | University of California, San Francisco | 802 | 2018-06-01 | 2022-07-01 | |
| Bladder Cancer Longitudinal Biorepository for Development of Novel Therapeutics/Biomarkers Registry - Bladder Cancer | Recruiting | University of Kansas Medical Center | 1000 | 2017-11-02 | 2026-03-10 | |
| Brain, Blood And Clot or Tissue Registry And Collaboration Registry - Acute Ischemic Stroke, Cerebrovascular Disorders | Recruiting | Justin Fraser | 1000 | 2017-05-11 | 2026-03-04 |
Showing 20 of 43. Sign in to see all of them.
Prostatic Neoplasms (4) · Neoplasms (3) · Chronic Disease (2) · Ischemic Stroke (2) · Lung Neoplasms (2) · Tachycardia, Ventricular (2) · Ventricular Fibrillation (2) · Achondroplasia (1) · Acquired Immunodeficiency Syndrome (1) · Acute Coronary Syndrome (1) · Adenocarcinoma (1) · Alzheimer Disease (1) · Amyloidosis (1) · Amyloidosis, Familial (1) · Anemia, Sickle Cell (1)
King Faisal Specialist Hospital & Research Center (3) · Emory University (2) · University of California, San Francisco (2) · Abramson Cancer Center at Penn Medicine (1) · Beni-Suef University (1) · Cedars-Sinai Medical Center (1) · Center for Biomedical Research, LLC (1) · Children's Hospital of Philadelphia (1) · Christoph Aufricht (1) · Duke University (1) · Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico (1) · Fundacion para la Investigacion Biomedica del Hospital Universitario Ramon y Cajal (1) · Fundación Instituto Valenciano de Oncología (1) · Heinrich-Heine University, Duesseldorf (1) · HemoShear Therapeutics (1)
United States (22) · Canada (5) · Germany (3) · Spain (3) · United Kingdom (3) · Austria (2) · Belgium (2) · Italy (2) · Egypt (1) · France (1) · Iran (1) · Japan (1) · Mexico (1) · Netherlands (1) · Saudi Arabia (1)
Urmimala Sarkar, MD, MPH (2) · Al Jubran, M.D. (1) · Anita Villani, MD (1) · Ankoor Shah, MD (1) · Arshed Quyyumi, MD (1) · Athena F Zuppa, MD MSCE (1) · Christopher Porter, MD (1) · Curtiland Deville, MD (1) · Daniel Scherr, Assoz. Prof. (1) · Deborah A Kuban, MD (1) · Deborah Fang, MD (1) · Frank Vermassen, MD, PhD (1) · George Klein, M.D. (1) · James R Gray, M.D. (1) · Jane Paulsen, PhD (1)
PMID 11562615, PMID 14722146, PMID 15173474, PMID 15371373, PMID 16304133, PMID 17079534, PMID 17158947, PMID 19490662, PMID 19524719, PMID 22535856, PMID 24468227, PMID 25092079, PMID 25250882, PMID 25868405, PMID 26101360, PMID 26518107, PMID 26597755, PMID 27230800, PMID 27940694, PMID 28068438, PMID 29068297, PMID 29079317, PMID 30064997, PMID 30108375, PMID 30471345, PMID 30907924, PMID 30997514, PMID 31428442, PMID 31668886, PMID 32010048, PMID 32047648, PMID 32098788, PMID 32532791, PMID 32641418, PMID 33768217, PMID 33975923, PMID 34078747, PMID 34250820, PMID 34301773, PMID 34493539, PMID 34558059, PMID 34601491, PMID 34675131, PMID 34728392, PMID 34794172, PMID 35104887, PMID 35141572, PMID 35287964, PMID 35300859, PMID 35309551
P30HS023558 (2)