4 recruiting, 2 completed, 1 enrolling by invitation, 1 not yet recruiting. 1 Not applicable, 1 Phase 1, 1 Phase 3.
| Phase | Trials | Status |
|---|---|---|
| Not applicable | 1 | Completed 1 |
| Phase 1 | 1 | Recruiting 1 |
| Phase 3 | 1 | Recruiting 1 |
Follow FSHD - Facioscapulohumeral Muscular Dystrophy: new trials by email Literature Review of FSHD - Facioscapulohumeral Muscular Dystrophy trials Research Report on FSHD - Facioscapulohumeral Muscular Dystrophy
Tick up to 5 trials to compare them side by side (eligibility, arms, endpoints, adverse events) in a Literature Matrix.
| Trial | Phase | Status | Sponsor | Enrollment | Start | Updated |
|---|---|---|---|---|---|---|
| Safety and Preliminary Efficacy of ULSC in Facioscapulohumeral Muscular Dystrophy (FSHD) ULSC, Placebo - FSHD - Facioscapulohumeral Muscular Dystrophy | Phase 1 | Recruiting | Restem, LLC. | 16 | 2025-12-01 | 2026-10-21 |
| A Study to Evaluate Del-brax (Also Referred to as AOC 1020) in Participants With FSHD AOC-1020, Placebo - Facioscapulohumeral Muscular Dystrophy, FSHD | Phase 3 | Recruiting | Avidity Biosciences, Inc. | 200 | 2025-06-10 | 2026-07-27 |
| Muscle MRI Outlining of Neuromuscular Diseases Using Artificial Intelligence No intervention - Becker Muscular Dystrophy, FSHD - Facioscapulohumeral Muscular Dystrophy | Not yet recruiting | Copenhagen University Hospital, Rigshospitalet | 120 | 2025-05-01 | 2025-04-08 | |
| Imaging and Gait Analysis in FSHD Patients FSHD - Facioscapulohumeral Muscular Dystrophy | Enrolling by invitation | Fondazione Policlinico Universitario Agostino Gemelli IRCCS | 40 | 2024-11-30 | 2025-09-10 | |
| Ten Year Follow-up in FSHD: the FOCUS 3 Study FSHD - Facioscapulohumeral Muscular Dystrophy | Recruiting | Radboud University Medical Center | 200 | 2024-09-01 | 2025-04-04 | |
| BetterLife FSHD: A Patient-driven Health and Research Platform Observational - FSH, FSH Muscular Dystrophy | Recruiting | FSHD Society | 5000 | 2024-08-02 | 2026-02-20 | |
| High Intensity Training in Patients With Facioscapulohumeral Muscular Dystrophy Supervised training, Unsupervised training, Optional training - FSHD - Facioscapulohumeral Muscular Dystrophy | Not applicable | Completed | Grete Andersen, MD | 18 | 2014-06-01 | 2016-04-25 |
| 1 Year MRI Followup in Facioscapulohumeral Muscular Dystrophy MRI - FSHD - Facioscapulohumeral Muscular Dystrophy | Completed | Grete Andersen, MD | 45 | 2014-05-01 | 2015-05-14 |
Muscular Dystrophy, Facioscapulohumeral (8) · Facioscapulohumeral Muscular Dystrophy 1B (2) · Disease Progression (1) · Facioscapulohumeral muscular dystrophy 1a (1) · Hypokalemic Periodic Paralysis (1) · Motor Activity (1) · Muscular Dystrophy, Duchenne (1)
Congenital, Hereditary, and Neonatal Diseases and Abnormalities (8) · Genetic Diseases, Inborn (8) · Muscular Diseases (8) · Muscular Disorders, Atrophic (8) · Muscular Dystrophies (8) · Musculoskeletal Diseases (8) · Nervous System Diseases (8) · Neuromuscular Diseases (8) · Behavior (1) · Disease Attributes (1) · Genetic Diseases, X-Linked (1) · Metabolic Diseases (1) · Metabolism, Inborn Errors (1) · Metal Metabolism, Inborn Errors (1) · Nutritional and Metabolic Diseases (1)
Sodium Chloride (1) · Watchful Waiting (1)
Grete Andersen, MD (2) · Avidity Biosciences, Inc. (1) · Copenhagen University Hospital, Rigshospitalet (1) · FSHD Society (1) · Fondazione Policlinico Universitario Agostino Gemelli IRCCS (1) · Radboud University Medical Center (1) · Restem, LLC. (1)
Denmark (3) · United States (3) · Italy (2) · Netherlands (2) · Canada (1) · France (1) · Germany (1) · Japan (1) · Spain (1) · United Kingdom (1)
Amanda Hill, MBA (1) · Enzo Ricci (1) · John W Day, MD, PhD (1)