2 recruiting, 1 completed, 1 not yet recruiting. .
Follow Denys-Drash Syndrome: new trials by email Literature Review of Denys-Drash Syndrome trials Research Report on Denys-Drash Syndrome
Tick up to 5 trials to compare them side by side (eligibility, arms, endpoints, adverse events) in a Literature Matrix.
| Trial | Phase | Status | Sponsor | Enrollment | Start | Updated |
|---|---|---|---|---|---|---|
| Denys-Drash Syndrome and Risk of Post-transplant Lymphoproliferative Disorder Collection of data from the patient's medical file - Denys-Drash Syndrome | Not yet recruiting | Assistance Publique - Hôpitaux de Paris | 108 | 2026-06-01 | 2026-05-26 | |
| Registry for Patients With Wilms' Tumor Suppressor Gene 1 (WT1) Mutation Associated Diseases Denys-Drash Syndrome, Frasier Syndrome | Completed | Universitätsklinikum Hamburg-Eppendorf | 52 | 2010-10-01 | 2015-05-28 | |
| Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford Rare Disorders, Undiagnosed Disorders | Recruiting | Sanford Health | 20000 | 2010-07-01 | 2025-05-29 | |
| National Registry of Rare Kidney Diseases Adenine Phosphoribosyltransferase Deficiency, AH Amyloidosis | Recruiting | UK Kidney Association | 35000 | 2009-11-06 | 2023-10-04 |
Atypical Hemolytic Uremic Syndrome (2) · Cystinosis (2) · Frasier Syndrome (2) · Nephrotic Syndrome (2) · Oculocerebrorenal Syndrome (2) · 3-Methylglutaconic Aciduria, Type V (1) · Achalasia Addisonianism Alacrimia syndrome (1) · Acrodysostosis (1) · Addison Disease (1) · Adenine phosphoribosyltransferase deficiency (1) · Alagille Syndrome (1) · Alstrom Syndrome (1) · Amnesia, Transient Global (1) · Aniridia (1)
Congenital Abnormalities (4) · Congenital, Hereditary, and Neonatal Diseases and Abnormalities (4) · Disorder of Sex Development, 46,XY (4) · Disorders of Sex Development (4) · Endocrine System Diseases (4) · Female Urogenital Diseases (4) · Female Urogenital Diseases and Pregnancy Complications (4) · Genetic Diseases, Inborn (4) · Gonadal Disorders (4) · Kidney Diseases (4) · Kidney Neoplasms (4) · Male Urogenital Diseases (4) · Neoplasms (4) · Neoplasms by Histologic Type (4) · Neoplasms by Site (4)
Assistance Publique - Hôpitaux de Paris (1) · Sanford Health (1) · UK Kidney Association (1) · Universitätsklinikum Hamburg-Eppendorf (1)
Australia (1) · France (1) · Germany (1) · United Kingdom (1) · United States (1)
Anja Lehnhardt, MD (1) · Mathilde M.D. Grapin (1)