AIM 3 Focused Adaptation of a Mobile Caregiver Intervention for Dementia Caregivers

• Brain CareNotes Latino (Behavioral): This is a mobile app supported behavioral intervention. Caregivers/ participants will communicate with care coaches through the app and through individualized remotely delivered sessions. The app generates advice cards to develop a care plan that addresses behavioral and psychological symptoms of dementia (BPSD), and tracks cognitive, functional, behavioral and psychological symptoms of the patient and informal caregiver participant's health and quality of life. Individual care coach sessions will focus on management of BPSD and caregiver burden.
• Dementia Care app (Other): Information only app that is freely available in the app store and provides information on dementia care.

Primary outcomes

• Feasibility of the intervention will be measured by recruitment rate [After 6 months participation completed.]: recruitment rate will be calculated by calculating No. approached, No. agreeing, No. consenting, and No. consenting/No. approached.
• Data completion [After 6 month participation.]: Data completion will be collected continually and computed after the final assessment by calculating No. of complete caregiver burden and BPSD assessments per consenting participant/total No. of possible assessments. We will separately compute missing data and attrition for all causes vs. death in the intervention vs. control groups. An enrollment and completion rate of 80% will be considered evidence for successful feasibility.
• System Usability Scale (SUS) [The SUS will be administered at baseline, 3 and 6 month follow up appointment.]: The System Usability Scale (SUS) is a 10-item questionnaire scored on a 5-point Likert scale (1 = "Strongly Disagree" to 5 = "Strongly Agree"). Total administration time is 1-2 minutes. The total score range is 0 to 100 ( calculated using a specific scoring formula, not a simple percentage). Identified benchmarks will include mean SUS scores of 68 and above. English and Spanish versions of the SUS will be administered to measure usability
• Accessibility of Intervention Measure (AIM) [Baseline, 3 and 6 month follow up appointment.]: The Acceptability of Intervention Measure (AIM) (developed by Weiner et al., 2017) consists of 4 items rated on a 5-point Likert scale (1 = "Completely Disagree" to 5 = "Completely Agree"). Total administration time is 1-2 minutes. Average score of1 to 5 is calculated by averaging all 4 items. Summed total score range is 4 to 20 (calculated by adding all 4 items together). Higher scores indicate greater intervention acceptability. English and Spanish versions of the AIM will be administered.

Secondary outcomes

• Caregiver burden and patient BPSD severity will be measured by the Neuropsychiatric Inventory Questionnaire (NPI-Q) [To be collected at baseline, 3 and 6 month follow up.]: The Neuropsychiatric Inventory Questionnaire (NPI-Q) is a brief clinical measurement filled out by a caregiver to assess behavioral and psychological symptoms in dementia across 12 domains (e.g., agitation, depression, anxiety, apathy, delusions, hallucinations). It takes about 5-10 minutes to complete. Symptom severity score ranges from 0-36 and the caregiver distress score ranges for 0-60. Higher scores indicate greater behavioral severity and heavier caregiver burden.

Sex: All, ages: 18 Years to any

Inclusion Criteria:

1. Self-identify as Hispanic/Latino and are informal caregivers of a person with dementia.
2. Able to speak or read English or Spanish
3. Able to use technology as measured by a technology screening measure.
4. Age 18 and older

Exclusion Criteria:

\- Caregivers of individuals with non-dementia related disease.

NIH grants: K23AG084856