Experience of Parents/Carers of Children With Severe Motor Disabilities Suffering From Spinal Pain?

NCT06287359 — Completed, 13 participants, Centre Hospitalier Universitaire de Nīmes

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What is the Day-to-day Experience of Parents/Carers of Children or Adolescents With Severe Motor Disabilities Suffering From Spinal Pain?

RegistryNCT06287359, acronym Vé-Quo-Pa-H-R
StatusCompleted
Study typeObservational
Enrollment13 (Actual)
SponsorCentre Hospitalier Universitaire de Nīmes (Other)
ConditionsLow Back Pain
Interventionsindividual interviews (Other)
Datesstart 2024-04-01, primary completion 2024-06-30, completion 2024-06-30, first posted 2024-03-01, last updated 2026-06-17
Locations1 site in France

Related Papers Related Patents Related Grants Related Experts
All trials for Low Back Pain All trials of individual interviews

-Summary

Parents of disabled children suffer from back pain more frequently than the general population. At present, the literature does not identify any specific factors responsible for this suffering.

For patients suffering from chronic back pain, there are specific treatment programmes in the Physical Medicine and Rehabilitation Department, with a focus on pain management.

The investigators would like to develop specific programmes for parents/carers of children/adolescents with severe motor disabilities.

To achieve this, it is important to gain a better understanding of the factors that contribute to the onset of pain.

With this in mind, the investigators are conducting a qualitative study to gain a better understanding of the day-to-day lives of these parents.

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+Arms and interventions

ArmTypeInterventionsDescription
Parents/carersOther: individual interviewsParents or carers of children with severe motor disabilities complaining of spinal pain
  • individual interviews (Other): Qualitative research with individual interviews

+Outcome measures

Primary outcomes

  • Individual interviews [baseline]: To understand the lived experience of parents/carers during the daily care of their child by means of a phenomenological analysis of the interviews

+Eligibility

Sex: All, ages: 18 Years to any

Inclusion Criteria:

* Parents or carers of children with severe motor disabilities complaining of spinal pain

Exclusion Criteria:

* Parent/carer refusing to participate

+Locations (1)

FacilityCityCountryStatus
CHU de NîmesNîmes, GardFrance

+Investigators

  • Anissa MEGZARI, Study director, Centre Hospitalier Universitaire de Nīmes