Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

NCT04690374 — Recruiting, 250 participants, Memorial Sloan Kettering Cancer Center

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Registry for Patients With Desmoplastic Small Round Cell Tumor

Registry	NCT04690374
Status	Recruiting
Study type	Observational
Enrollment	250 (Estimated)
Sponsor	Memorial Sloan Kettering Cancer Center (Other)
Conditions	Desmoplastic Small Round Cell Tumor
Dates	start 2020-12-22, primary completion 2027-12-01 (estimated), completion 2027-12-01 (estimated), first posted 2020-12-30, last updated 2026-01-12
Locations	1 site in United States

-Summary

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

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+Arms and interventions

Arm	Type	Interventions	Description
Desmoplastic small round cell tumor (DSRCT)			Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT

+Outcome measures

Primary outcomes

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor [7 years]: The aim of this study is the collection of data.

+Eligibility

Sex: All

Inclusion Criteria:

* Participants must have a diagnosis of desmoplastic small round cell tumor
* Participants may be of any age as long as the appropriate consent and assent may be obtained
* Willing to provide historical and longitudinal clinical data

Exclusion Criteria:

* Participant unwilling to provide consent or share historical and longitudinal clinical data

+Locations (1)

Facility	City	Country	Status
Memorial Sloan Kettering Cancer Center (All Protocol Activities)	New York, New York	United States	Recruiting

+Investigators

Emily Slotkin, MD, Principal investigator, Memorial Sloan Kettering Cancer Center