| Registry | NCT03146936 |
|---|---|
| Status | Recruiting |
| Study type | Observational |
| Enrollment | 120 (Estimated) |
| Sponsor | Fondazione Epatocentro Ticino (Other) |
| Conditions | Cholangitis, Sclerosing, PSC, Primary Sclerosing Cholangitis (PSC) |
| Dates | start 2017-02-28, primary completion 2030-12-31 (estimated), completion 2030-12-31 (estimated), first posted 2017-05-10, last updated 2025-08-19 |
| Locations | 21 sites in Switzerland |
Related Papers Related Patents Related Grants Related Experts
AI Assistant Save
All trials for Cholangitis, Sclerosing All trials for PSC
Research project in which biological material is sampled and health-related personal data is further used and collected.
Coded data are used.
The investigators wish to collect high quality prospective data on a rare disease in order to elucidate epidemiology, natural history, response to treatment and outcome. In addition, a biobank allows addressing specific scientific issues on a variety of open questions. The cohort will provide a platform for carrying out scientific research projects on PSC. In addition, the cohort will allow collaborations with reference networks on PSC abroad
Sex: All
Inclusion Criteria: * Patients diagnosed with PSC according to established criteria (European Association for the Study of the Liver. EASL Clinical Practice Guidelines: management of cholestatic liver diseases) of any age. Patients not fulfilling such criteria but still diagnosed with PSC in a hepatology referral centre can be included * patients living in Switzerland Exclusion Criteria: * N/A
| Facility | City | Country | Status |
|---|---|---|---|
| Fondazione Epatocentro Ticino | Lugano, Canton Ticino | Switzerland | Recruiting |
| Gastroenterologie und Hepatologie Clarunis - Universitäres Bauchzentrum Universitätsspital Basel | Basel | Switzerland | Recruiting |
| Universitäts-Kinderspital beider Basel UKBB, Gastroenterologie&Ernährung | Basel | Switzerland | Recruiting |
| Inselspital | Bern | Switzerland | Recruiting |
| Kinderklinik, INSELSpital, Universität Bern, Pädiatrische Gastroenterologie, Hepatologie und Ernährung | Bern | Switzerland | Recruiting |
| Spital Bülach | Bülach | Switzerland | Recruiting |
| Kantonsspital Graubünden | Chur | Switzerland | Recruiting |
| Hôpitaux Universitaires de Genève, Centre Suisse des Maladies du foie de l'Enfant- Département de l'Enfant et de l'Adolescent | Geneva | Switzerland | Recruiting |
| Hôpitaux Universitaires de Genève, Service de Gastroentérologie & Hépatologie, Département des Spécialités | Geneva | Switzerland | Recruiting |
| CHUV: Centre hospitalier universitaire vaudois | Lausanne | Switzerland | Recruiting |
| CHUV Département femme-mère-enfant | Lausanne | Switzerland | Recruiting |
| Kantonsspital Baselland | Liestal | Switzerland | Recruiting |
| Kinderspital Luzern LUKS, Pädiatrische Gastroenterologie | Lucerne | Switzerland | Recruiting |
| Luzerner Kantonsspital | Lucerne | Switzerland | Recruiting |
| EOC Ospedale Regionale di Lugano - Italiano | Lugano | Switzerland | Recruiting |
| Ostschweizer Kinderspital | Sankt Gallen | Switzerland | Recruiting |
| Kantonsspital St.Gallen | Sankt Gallen | Switzerland | Recruiting |
| Kantonsspital Winterthur | Winterthur | Switzerland | Recruiting |
| Pädiatrische Gastroenterologie Departement Kinder- und Jugendmedizin Kantonsspital Winterthur | Winterthur | Switzerland | Recruiting |
| Universitäts-Kinderspital Zürich - Eleonorenstiftung | Zurich | Switzerland | Recruiting |
| Universitätsspital Zürich | Zurich | Switzerland | Recruiting |